tag:blogger.com,1999:blog-4144064940334712137.post3053293592227686999..comments2018-05-10T06:42:35.300-07:00Comments on A CRPSy Life.: Spasmic fantastic.Becca_Boothttp://www.blogger.com/profile/14518064102435148090noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4144064940334712137.post-12389929707797937062012-07-09T12:19:49.342-07:002012-07-09T12:19:49.342-07:00Love you Becca!
Hoping for an update when you or f...Love you Becca!<br />Hoping for an update when you or family feel up to it!!JuJuhttps://www.blogger.com/profile/05964969751574273561noreply@blogger.comtag:blogger.com,1999:blog-4144064940334712137.post-80926028500831481712012-07-06T15:32:14.654-07:002012-07-06T15:32:14.654-07:00OMG Becca reading your story is like listening to ...OMG Becca reading your story is like listening to my son he suffers with CRPS and chronic spasms just like yourself my son suffers with the spasms every few minutes i have not come across anyone quite like him before but now i have read your story i don't feel that is alone,he is mostly bed bound due to the savarity of his condition like yourself he's a lovely person and also suffers with anxiety problems, my thoughts are with you, we live in nottingham not to far from yourself. tracy xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4144064940334712137.post-34661297046429201252012-07-04T09:22:55.323-07:002012-07-04T09:22:55.323-07:00While my country celebrates independence from Engl...While my country celebrates independence from England today--I celebrate knowing you, Becca, from across the pond and nearly 3,000 miles more of America. In all your bravery and "realness" I am so happy my family and I have come to know you. It helps everything my sons have gone through and are going through--and now it's time we really buckle down and pray for you. I pray that today is a better day than yesterday was, and that tomorrow will be better than today.<br />Blessings :)JuJuhttps://www.blogger.com/profile/05964969751574273561noreply@blogger.comtag:blogger.com,1999:blog-4144064940334712137.post-20084399722206560932012-07-03T15:02:16.386-07:002012-07-03T15:02:16.386-07:00I'm trying to absorb this information and come...I'm trying to absorb this information and come up with a statement of love, encouragement and hope. It's a helpless feeling from so many miles away--but my prayers and hugs are with you. All I can say is that God himself put your name on my mind so many days recently--and I was already praying for you especially. Once my mom had a reaction to some medicine that was very dystonia-like--so I may be biased as to making sure the doctors eliminate that possibility. Please keep us all updated as you can, and know our family is with you in heart. Fight the good fight. Love and hugsJuJuhttps://www.blogger.com/profile/05964969751574273561noreply@blogger.comtag:blogger.com,1999:blog-4144064940334712137.post-65455748495657531202012-07-03T12:45:58.894-07:002012-07-03T12:45:58.894-07:00In reading this I feel as though I am reading my o...In reading this I feel as though I am reading my own written story of my battle with CRPS induced dystonia. It's truly shocking how similar our stories are. I even have the hand that won't open, been closed since Dec 29, 2011. The body movements, joint contortions, legs, back, eyes, jaw, & mouth- this is the same story that I have endured. I was even once told by an onlooked that it looked like something from the exorcist. I use the same meds, with baclofen and diazepam, & my dr recently added Keppra to the mix. I've never met someone who has had similar spasms/tremors to me, & I cannot express in words how much I feel for you. I wish you the best in everything and please, if you ever want to talk, I really understand your struggle. Contact me through this medium or @CRPSadvocate on twitter. I'm always here to talk or just listen. Keep fighting Becca and please stay strong. You will be in my thoughts and prayers.Anonymoushttps://www.blogger.com/profile/05345544290505898378noreply@blogger.comtag:blogger.com,1999:blog-4144064940334712137.post-83214617283226394222012-07-03T12:22:26.213-07:002012-07-03T12:22:26.213-07:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/05345544290505898378noreply@blogger.com